Frequently Asked Questions for Patients

Living with a congenital heart defect (CHD) shouldn’t mean living with unanswered questions. Our team is ready to answer any questions you may have about your specific condition. For answers to some of the most commonly asked questions, see below.

How many adults have a CHD? Show: Approximately six in every 1,000 adults living today have a CHD.
Are there medications I should be taking or avoiding? Show: Medications vary depending on each patient. If you’re taking heart medication, it’s important to ask your doctor or pharmacist if you should avoid certain medications. For instance, if you have high blood pressure, you might need to avoid certain cold medications.
Could my anxiety or depression be linked to my heart condition? Show: About one-third of adults with a CHD have anxiety or depression. If you’re experiencing these symptoms, please know that they are normal and your doctor can help you find the appropriate treatment.
Do I have any exercise limitations? Show: It is important to learn your personal healthy level of exercise. Depending on your condition, your doctor may prescribe a program of cardiac or pulmonary rehab.
Is it safe for me to fly or visit high altitudes? Show: Air travel is safe for most heart patients, but your condition may require taking a few precautions. Likewise, some people with complex heart conditions, especially ones associated with pulmonary hypertension, may need to avoid higher altitudes.
Are there any concerns about CHDs and pregnancy? Show: Some women with certain heart conditions shouldn’t take birth control or other medications containing estrogen. Although most women with a CHD can have a healthy pregnancy, it is important to ensure that your heart health is optimized before pregnancy and that you are appropriately monitored during pregnancy, delivery and the postpartum period.
As a man, generally, your risk of passing a CHD to your child is very low. For some familial conditions, it may be appropriate to meet with a genetic counselor before you and your partner conceive to determine the risk of passing your condition to your child. Your doctor can also tell you if your partner needs to have a fetal echo ultrasound during pregnancy.
I’m having surgery that isn’t heart-related. Are there any precautions I need to take? Show: If a procedure requires anesthesia, it’s important for your cardiologist to speak to your surgeon and/or anesthesiologist. They can communicate certain precautions that should be taken to make sure the procedure is safe for your heart.
What is my long-term prognosis? Show: While each CHD case is different, many adults with CHDs can live a long and normal life through ongoing surveillance and monitoring. These early and regular visits can save heart muscle and have a significant impact on long-term health.
Will I need a heart transplant? Show: For some patients, a heart transplant may become the only option, particularly if they’re not followed closely by a CHD specialist.
To get information tailored to your specific condition, or to ask more questions about living with a CHD, contact our specialists today.