Support and Resources

It is often helpful for parents and caregivers of children with craniofacial anomalies to connect with others who are facing similar issues and challenges. The Cleft and Craniofacial Center suggests a variety of helpful resources.

Foundations and Organizations

  • Cleft Advocate − an organization that educates families whose lives are touched by cleft lip and palate or other craniofacial anomalies
  • Cleft Palate Foundation − a nonprofit organization dedicated to optimizing the quality of life for individuals affected by facial birth defects
  • The Smile Train − an international children’s charity dedicated to helping the millions of children in the world who suffer from cleft lip and palate

Related Blog Posts

Preparing for a Baby With Cleft Lip/Palate

Receiving the news that your baby has a cleft lip/palate can be overwhelming, but preparation up front can be helpful for the early part of your journey. Read Dr. van Aalst’s tips for preparing for your child’s cleft lip/palate.

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Thoughts Before, During and After Mia’s Cleft Lip Surgical Repair

A mother explains how she felt before, during and after her daughter, Mia’s, cleft lip surgical repair.

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Treacher Collins: 5 Things Parents Should Know

Shana has Treacher Collins, a condition where some of the bones & tissues in the face aren’t fully developed. Read what her dad wants you to know about her.

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Other Resources

Cleft Support on Pinterest

Find helpful resources - blog posts, tips, infographics, etc - for parents caring for a child with a cleft lip and/or cleft palate.

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Cleft Lip / Cleft Palate Feeding

Infants with cleft lip and/or cleft palate can have difficulty feeding. These babies usually benefit from modified feeding techniques to make feeding successful and enjoyable.

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